Culturally Adapted Education Materials for Families of English-Speaking Minority Patients with Early Psychosis

Psychosis is a serious mental illness that usually begins in adolescence or young adulthood and is characterized by distressing symptoms like hallucinations and paranoia. Psychosis ranks in the top 3 most disabling conditions worldwide. Educating the families of affected individuals is known to make patients feel better, yet many family members of minority patients don’t participate in the education sessions that are offered. Reasons for the lack of participation include not trusting medical authorities and not feeling comfortable to bring up cultural issues like religion, spirituality, and racism. There have been no early psychosis programs that have addressed these problems, so the current study is doing just that.

Over the last two years, researchers have met with leaders and members of English-speaking minority communities, families of English-speaking minority patients with psychosis, patients, and clinicians to understand what changes are needed to make family education about psychosis more acceptable and helpful to people of diverse backgrounds. While it is true that research efforts to date have produced a large and growing body of data, these findings and results need to be prepared for presentation to communities and families. Our knowledge translation activities will include writing plain language summaries of meetings with community and family members to explain what kinds of topics and discussions will facilitate effective care for their loved ones with early psychosis and better collaboration with the clinical team. We will also present statistical findings in a non-threatening and easy-to-access format that will be easy for everyone to understand.

The potential impact of these activities will give community and family members a greater understanding of psychosis, will improve their participation in education seminars, and will contribute to healthier and happier lives of young people with early psychosis.

---

Outputs:

• Jarvis, E. G., Desmarais, C., Lang, E., Zimanyi, L., & Leroux-Goyet, S. (March 2023). Family Psychoeducation series [Virtual workshop].

• Khan, S. (March 2023). Looking after our and our Youth's Mental Health. A presentation on caring for our mind, body, and spirit [Presentation]. Amal Center for Women, Montreal, Canada.

• Paquin, V., Pow, R. (March 2023). Training of workers on first episode psychosis L’Annexe is a community organization engaged in the socialization of multicultural young adults with intersectional vulnerabilities [Presentation]. L’Annexe – Ometz Drop-in centre for young adults 16-35, Montreal, Canada.

• Unknown. (Februrary 2023). Exploring the Mental Health Stigma Within the Black Community [Virtual event].